What is palliative care?
Palliative care is the active total care of patients with incurable diseases. Palliative care responds to physical, psychological, social and spiritual needs of the patients and their families and if necessary, extends support to the family in bereavement. It is patient centred, and not disease-focused. According to the World Health Organization, "palliative care is an approach that improves the quality of life of patients and their families facing problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and assessment and treatment of pain and other problems, physical, psychosocial and spiritual”. Palliative care provides relief from pain and other distressing symptoms and offers a support system to help patients live as actively as possible until death. Palliative care also offers support to help the family cope with the patient's illness and in bereavement.
Need for palliative care
- With the rapid ageing of the Indian population the highest number of patients needing palliative care in the future will be from among the terminally ill elderly.
- Palliative care relieves suffering in patients with incurable diseases. The physical, psychosocial and spiritual support from palliative care can dramatically improve the quality of life of people with advanced chronic diseases and their families. the lack of access to palliative care impacts individuals, families and communities in multiple ways.
- Most patients requiring palliative care may get drawn to inappropriate, futile and expensive treatments leading to further harm to them, including financial liabilities.
- Lack of counselling and proper training of patients and their care givers results in poor quality of life of the patients.
- Lack of specific palliative care facilities leads to use of scarce resources meant for curative therapy and also results in blockage of hospital beds.
Kerala Model
The main components of Kerala's programme are:
- With only 3% of India's population, the tiny state provides two-thirds of India's palliative care services. Kerala has a successful model of community based palliative care.
- Community mobilisation and ownership through community based organizations
- Involvement of the local self government institutions
- Incorporation of palliative care in the primary health care system
- Kerala's success in developing palliative care has been due to
- Going beyond the medical paradigm to recognise the role of community in the care of the chronically
- Active support from the media
- Involvement of local governments empowered under the decentralised system of governance
- Palliative care policy by Government of Kerala
- National Rural Health Mission's involvement in implementation of the policy
- The key challenge before Kerala's programme is in integrating the community initiatives with government programmes.
Conditions Treated
Palliative care specialists can care for a range of conditions, including:
- Alzheimer's and Dementia
- Amyotrophic Lateral Sclerosis (ALS)
- Bone Marrow Transplant
- Cancer
- Cardiac Disease
- Kidney Disease
- Leukaemia and Lymphoma
- Liver Disease
- Multiple Sclerosis
- Parkinson's Disease
- Pulmonary Fibrosis
- Sickle Cell Anemia
- Stroke
Symptom Control
Regardless of the condition, palliative care treatments are designed to make you more comfortable during the end of life, controlling your symptoms where possible. These can include:
- Pain, treatments: side-effects and emotional aspects of pain
- Mouth care: how to keep your mouth healthy
- Fatigue: why treatment can cause fatigue and what you can do about it
- Eating problems: illnesses or treatments can cause a range of eating problems
- Breathlessness: causes and treatment
- Support in the last days and hours of life: the principles behind end of life care
Who Are the Professionals Who Will Help?
Our team consists of Doctors, Nurses and volunteers who have had intense Palliative care and they also attend training on regular intervals.
Over and above this we have an Emotional Support group who visits the lonely patients at their home to lend a listening ear to whatever they have to discuss or share...
Network partners
We operate as a Nurse led team guided by our Doctor who are all specialized in Palliative Care.. They go to individual homes assisted by our drivers and volunteers who accompany them on their home care services..
We have a very dedicated team of around 40 volunteers who render service selflessly.
We also have a night home care team who swing into action to assist any emergency calls after the regular office hours..
We also work in collaboration with:
PAIN AND PALLIATIVE CARE SOCIETY.
MEDICAL COLLEGE PO
CALICUT 673008
PALLIATIVE CARE SOCIETY, KOZHIKODE CITY.
ANNIE HALL ROAD
CALICUT 673002
0495-2301373
COMMUNITY PALLIATIVE CARE SOCIETY, MALAPARAMBA.
CIVIL STATION,
CALICUT - 673020.
MOB.7994511746
PALLIATIVE CARE PATIENTS BENEFIT TRUST.
MEDICAL COLLEGE,
CALICUT- 673008.
MOB.9847001570
COMMUNITY PALLIATIVE CARE CENTRE,
KINASSERY.
CALICUT- 673014.
Mob.9847888466.
Need information? Call us at Sparsham Palliative Care on 0495-2366399, +918086366399, +919447860730